Welcome to the International CDKL5 Disorder Output Database

This is a searchable database which allows you to create graphs based on the information provided to the International CDKL5 Disorder project by families and clinicians around the world.

To create graphs start by selecting a topic below.

Home    Mutations    Epilepsy    Sleep    Gastrointestional
Feeding    Breathing    Language    Mobility    Spinal curvature    Repetitive hand movements    Vision    Hospital admissions   

Distribution of cases by country of residence


The information provided in these graphs is based on question responses provided by participating families and / or clinicians. The data presented are unadjusted for age and intended for general information only. The number of cases contributing to each graph varies as specific characteristics are not applicable to all individuals and / or responses or not available for all cases within the database. These data should not be used or relied upon for any purpose without the knowledge and permission of the CDKL5 International Reference Panel. If you have any questions or feedback please fell free to contact us, we welcome your input.