This is a searchable database which allows you to create graphs based on the information provided to the International CDKL5 Disorder project by families and clinicians around the world.
Home
Mutations
Epilepsy
Sleep
Gastrointestional
Feeding
Breathing
Language
Mobility
Spinal curvature
Repetitive hand movements
Vision
Hospital admissions
Use the options below to generate graphs about stereotypies (repetitive hand movements).
Select an option and then click 'Create graph'.
Please select a graph option.
The information provided in these graphs is based on question responses provided by participating families and / or clinicians. The data presented are unadjusted for age and intended for general information only. The number of cases contributing to each graph varies as specific characteristics are not applicable to all individuals and / or responses or not available for all cases within the database. These data should not be used or relied upon for any purpose without the knowledge and permission of the CDKL5 International Reference Panel. If you have any questions or feedback please fell free to contact us, we welcome your input.